(From Eric re: recent meeting about Glenn’s memorial. To be part of Eric’s email list, send him a note at Eric@nlsco.com)
All:
It was great to gather to make plans for Dad’s memorial, and the timing of our meeting and the new season starting seems so apropos to me. Spring is here and we’re ready to celebrate! Dad would be honored by our meeting and proud of our actions. Thanks, you guys.
We did some great organizing today, and I think we’re close to finalizing the details of the memorial on May 3rd. Here is the breakdown of our discussion, as I saw it:
Finances: $10,000 donated by Wayne and Bernice Stockwell: I stated that we intend to use the funds mentioned to pay for Merriman’s ($750), a memorial plaque (~$500), and whatever expenses incurred for the memorial party (~$750) – more on that in the “Food and Drink” section of this email. The balance of that money, whatever other money was donated to date, and monies donated before or at the party will go to Humboldt Area Foundation where I will be setting up a scholarship fund in Dad’s name. We hope that will equate to around $20,000 so we can give out around $1000 annually. We will have a donation table with a cashbox and receipt book at the party, and I will give a brief informational speach around 4PM to familiarize everyone with the details of the scholarship and how HAF administers such funds. I will put together some information about that and have it visible to all at the memorial party, and I do intend to have the fund in place by the time of the party. I am also considering speaking about my Dad to the entire group at the party, and I’ll open the floor to anyone else who wants to do that.
Schedule: Right now we want to tell people that we’ll gather at the beach immediately to the north of the “little head” at 1PM so we can paddle out and have the ceremony on the water by 2PM. Those who do not want to or are unable to paddle out can view the ceremony from the memorial lighthouse at the top of the hill on the main road that goes down into the harbor. There is a 5.3′ high tide at 10:42AM, so the beach should be open for parking and gathering by 1-2, no problem. I will speak briefly at the ceremony, and I think what I say and how long I take will be largely contingent on how many people are out there and how well we’re able to hear one another. I will NOT use a bullhorn! We should be prepared for people to be showing up at Merriman’s any time after 1PM, as there will be some who aren’t paddling AND won’t want to stand in the wind at the lighthouse above the water. Those who have been out on the water should be arriving at Merriman’s around 3-4PM. All of this needs to be laid out in the announcement, so people know where they can be and when. Jenn and Pete agreed to work on the announcement which sounds like it will include an email using the extensive distributions we have, at least one PSA through Jenn and probably Pete too, and possibly a flyer. An ad in the newspaper was also mentioned.
Parking: We talked about the lot at Merriman’s being pretty full with beach-goers midday on a Saturday, and we discussed a possible shuttle service. I think we should include this in the announcement that goes out, and suggest that people be ready to walk down the hill, as well as telling them not to park in the restaurant parking lot.
Food and Drink: Surfrider Humboldt stepped up big time, saying they’ll take care of providing water, soda, the hot meal (BBQ), salad and bread for everyone as well as plates, utensils, napkins…etc. Their expenses will be reimbursed from the GWS account. We talked of including this in the announcement and possibly asking folks to bring appetizers, side dishes and desserts based on last name – that can be up to Jenn and Pete with input from others. BYOB (beer) was decided on as the best policy so we can avoid the liability of having anything organized regarding alcohol. Jesse and Terry are contacts regarding the food and drink.
Music: Pete and Jenn agreed to talk to Sandy Flippin about providing “subdued” entertainment through his band, “Likely Story”. We certainly want to pay the going rate for this service if Sandy will accept it – please just let me know about that.
Volunteer list: Terry agreed to work on this as we’ll need people to help with food, parking/shuttling, setup, and especially cleanup. Bill volunteered to bring his trailer to help with the trash hauling and recycling.
Shrine material: We briefly discussed having photos and other GWS memorabilia at the party. We agreed that it’s a great idea, and we touched on the need for easels…etc. to help display what we have. I suggest emailing directly to Christina on this issue (since she left early! 8>}) – all kidding aside, I will be helping her make some enlargements of our favorite photos, and, as an artist, I think she has access to some easels. If you also have some easels or other items that could help then please let us know by emailing or calling.
I would like followup on this to go to all the recipients of this email unless you have something specific for one person, so please hit “reply to all” when you reply. Anything to add or that I may have left out should be brought in by anyone at any time.
Thank you all so much!
Eric Stockwell
Hey there:
UCSF called back and they do feel the tumors are larger. They want to scan Dad again in a month, and that may be able to happen up here.
With Stanford, oh how one’s perspective can change. Christina has been corresponding by email with Dr. Hancock there and he cleared some things up for us: Stanford were the ones to develop the Cyber-Knife, and they still feel that there was improvement in the tumors. The very optimistic and personal meeting with Dr. Kashani at UCSF on 11/19, along with our perception at the time that Stanford was just going through the motions, had us ready to dump Stanford, and we’ve kept them on hold as we’ve acquired the second opinion from UCSF. Now it seems we should be at Stanford – especially since they can bother to reply to communication on a consistent basis. We’re not going anywhere too soon, but we have something to hope for in Stanford’s willingness to try the Cyber-Knife on his brain (the spine tumor is apparently not a pressing issue at this time). Christina is checking with Eureka to see when they can do another followup scan, then we can get with Stanford and talk about getting down there for treatment again – maybe around the end of the month or early January.
In the meantime, Dad has been tired. The trip down south this week, combined with a couple of restless nights right before it, had him totally pooped out when he got back, and he’s recovering from it slowly.
If both UCSF and Stanford were to say, “let’s scan him again in January”, I’d really feel like the writing is on the wall regarding Dad’s status. It’s hard to write that, not because I’m not right there, dealing with those thoughts constantly, but because I don’t want to dash anyone’s hopes in any way. I feel strongly about keeping it real though, and that is largely, if not entirely, due to the trust and appreciation I have in and for the community who receives this update. Dad and Christina don’t read this, so I wanted to be clear about the landscape as it appears to me. We hope for the best, and it’s very important to me to be prepared for the worst. As you should know from reading other updates from me, it’s so beneficial for me to be able to express myself here that I make a point of doing it.
Thanks so much for all the support.
Greetings:
The cyber-knife appointment turned out to be another consultation, and there is much contradictory information between what UCSF and Stanford have said, and also between what UCSF said 3 weeks ago and what they’re saying now. The tumor board at UCSF will meet tomorrow and will review Dad’s case. We have some confidence that Dr. Huang’s office at UCSF will followup with us as promised yesterday, but we’ll believe that when we see it as there have been even more unanswered messages at this point. There were indicators in yesterday’s meeting that the treatments may be too much for him at his current level of strength, and, what’s more, that the tumors may not have shrunken after all.
We’re discouraged with the news, and are anxiously awaiting tomorrow’s “clarification”. We’re also discouraged with the lack of professionalism regarding the calls and fax that have gone unanswered, but UCSF did acknowledge a problem…
I plan to update again Friday.
Hey, Everybody:
Sorry for the lack of updates for the past two weeks. We’ve had some frustrating lack of progress with trying to get UCSF to respond to several phone calls and a very explicit fax asking them to do so. Dad, Christina, Carl and Anita are on their way down to UCSF as I write this. We think Dad will get the cyber-knife focused radiation treatment for his spine, as the MRI from Eureka and the accompanying report were consistent with a metastatic melanoma tumor there – we don’t KNOW that though, because of the lack of communication. The people we’ve been dealing with at UCSF have failed to answer these questions: did the tumor board at UCSF ever review Dad’s case as promised? Was the MRI from Eureka definitive regarding a tumor in/on the spine? What about the Gamma-Knife treatment that had been discussed? Basically they only gave us enough information to get us on the road… We’re running on almost blind faith, so hope along with us for the best.
Generally, other progress has been the same: slow but steady in mobility, strength, eating…etc. Hopefully I’ll know much more in a few days and be able to convey it here.
Enjoy the sun while it’s shining~
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